I find it hard to ask for help; I prefer to crack on by myself and wait for someone to notice me or realise I'm struggling and offer to...

Wednesday 22nd January 2014 was the day we had been waiting almost 10 weeks for. We'd arrived at Great Ormond Street Hospital o...

Today we should have been walking around in the cold at the Manchester Christmas Markets, but the snow over the North West we decided we wo...

Last Thursday was probably the most nervous I've ever been before an Outpatients Appointment; the whole train journey to London reminde...

When I was about 7 months pregnant with Osh, a lad who was a year younger than me at school was killed in a car crash. I remember watching...

Friday's appointment at Dr Ram's Rapid Access clinic has been booked since the day we brought Martha home in October. My main wor...

I should be fast asleep because we're off to London in the morning (we'll probably be on the train or even be at the Hospital by th...

I haven't blogged for a while, not on purpose and not for any particular reason...I'm a live blogger so unless there is anything ...

I can't explain how I felt on Thursday 15th October 2015. I've spoken to a lot of people since we came home and I've l...

We've never brought Martha Grace home so soon from after an Operation. Her scars have always more or less healed over by the time we...

That was the fastest turnaround in our family's history. 5 days after her fourth Open Heart Surgery and Martha Grace was discharged ...

Martha Grace hasn't been left on her own since she came out of theatre on Thursday. Since then at least one of us have been at her...

It's now 3:40am as I sit down to try to write this. We've been up for almost 24hrs straight and so much has happened that I w...

I knew there was always a chance it could happen again, but I didn't truly believe it would.  I hadn't unpacked from our trip...

Unfortunately Martha Grace's 4th Open Heart Surgery was cancelled; she was booked in for the 17th September but just we arrived for her...

This will be our third hospital admission; our last stay went from an estimate of 10 days to an actual stay of 10 weeks. We haven't bot...

What is it like to have nothing to worry about? I can't remember the last time when I didn't have something to worry about....

We should have caught the 07:22 train from Bangor to Euston today. We had an appointment at Great Ormond Street with Dr Ian Sullivan at 11:...

On Saturday 22nd August, 2015 - Martha Grace turned Two!!!!  That I can even say that is nothing short of a miracle and we continue to ...

I'm a live blogger, I blog as and when I have something I feel I want to share...sometimes a few weeks will pass without me posting any...